Today is May 13th! I am asking each of my friends, family and followers to help me have an amazing impact today for CCFA. Please share with your family and friends, an easy and simple way to support finding a cure for Crohn’s and Colitis patients. My teammates and I are training to raise awareness in Kona on June 22nd and Napa on July 20th by participating in a 1/2 marathons. Today, you can help raise the much needed funds by giving $13 on the 13th, the equivalent of the miles in the 1/2 marathon (13.1 to be exact).
Thank you for your support. I have the most amazing friends,family and followers!!
I am now officially 5 weeks away from my first 1/2 marathon and still $400 away from my first goal of $3500 for CCFA. Lots of doubts, frustrations and second guessing have taken place. This video is a great motivation and reminder to stick with…
To raise as much money as possible to help fund a cure for Crohn’s disease and ulcerative colitis
Every penny counts & it all adds up quickly! Please consider donating $13 (or more!) on the 13th of the month…in honor of the 13.1 miles I will be racing to help the more than 1.3 MILLION Americans suffering from IBD (it’s really 1.5 million).
To make a quick, secure, online donation…please visit my website:
Research shows that the number of people with Crohn’s Disease has been rising steadily, particularly among young people. More recently, numbers have stabilised.
Crohns Disease most commonly affects the small intestine and/or colon. It causes inflammation, deep ulcers and scarring to the wall of the intestine and often occurs in patches.The main symptoms are pain in the abdomen, general tiredness and loss of weight.
Crohn’s is sometimes associated with other inflammatory conditions affecting the joints, skin and eyes.
The severity of the symptoms fluctuates unpredictably over time. Patients are likely to experience flare-ups in between intervals of remission or reduced symptoms.
The cause or causes have not yet been identified in the illness. Both genetic factors and environmental triggers are likely to be involved. Crohn’s can affect young people during their education or as they become established in their career. Most sufferers can be maintained in remission for most of the time and are able to lead a full working life. However, some who have severe disease do not achieve their educational and career potential.
Tyler is 10 years old and in the 5th grade at Peabody Elementary. He is in cub scouts and loves the outdoors. His real passion is playing baseball and hopes to one day play in the major leagues. When he can’t play baseball he likes to play video games, card games and hangout with his little brother.
Tyler was diagnosed with Crohn’s disease about a year ago after losing 20 pounds in three months and feeling like he couldn’t leave a bathroom. Since being diagnosed he has already been hospitalized 3 times and have had to learn that getting blood drawn and other needle sticks are just part of his monthly routine. On average Tyler takes around 20 pills a day, and get an infusion of Remicade once a month. He now feel like all of the GI doctors and most of the nurses at Rocky Mountain Hospital for Children now know him by name. Tyler sometimes thinks he might be radioactive, considering all of the tests he has had done to figure out what is up with his insides, you name it he’s probably had it done. The last time he was in the hospital in December 2013 the doctors discovered that his gall bladder was not working properly and decided to remove it. That surgery was kind of painful for Tyler but he is now feeling better from that.
Tyler is thankful to be part of such a great school. With this disease, Tyler tends to miss a lot of school and suffers from a weakened immune system, but all of his teachers and his principal make sure that he doesn’t fall behind. Tyler was even able to “face time” with his class during one of his hospitalizations.
Last summer, Tyler had the privilege of attending Camp Oasis which is a camp provided through CCFA that allows kids like him with IBD to feel “normal” for a week. It was awesome spending time with other kids that understand his situation and feel what he feels. Tyler’s parents said that it was all possible through donations, so thanks to everyone that donates to the CCFA.
Tyler’s mom did the Nashville half marathon in September 2013. And now that he has been asked to be an honored hero for 2014 both his mom and dad have decided to run in the Napa half marathon and possibly the Kona half marathon as well. Please help Team Challenge and the CCFA raise money so that we can find a cure for Crohn’s and Colitis. I hope that someday no one will have to go through any of the things Tyler has had to do.